"The Financial Assistance for Respite Rule has a benign-sounding name, but it’s causing concern among those caring for children with special health needs.
"That’s because the rule actually eliminates the comprehensive cost-sharing program for caregivers.
"The two-page rule nixes the $700,000 payor-of-last-resort program, which is about 80 percent of the Children with Special Health Needs budget. It places the burden of paying deductibles, co-pays, and other costs back on families...."